Wednesday, 29 September 2010

What's the White Paper going to mean for Healthcare Information?

The need for better information is a theme at the core of the reforms announced in the health White Paper.

The preamble to the document states some of the principles on which the government is basing its approach. For instance, ‘patients will have access to the information they want, to make choices about their care. They will have increased control over their own care records.’ Empowering patients, a core value of the White Paper, will require far greater access to information than in the past.

Another view of the same principle appears in the declaration that ‘a culture of open information, active responsibility and challenge will ensure that patient safety is put above all else, and that failings such as those in Mid-Staffordshire cannot go undetected.’

Poor, much-maligned Mid-Staffs seems destined to be the icon for poor hospital performance for a while longer. This is the case even though it’s not obvious that it suffered from much more than resource starvation as a result of a headlong rush for Foundation Trust status. Indeed, it’s not even clear that it performed substantially less well than other Trusts: even Dr Foster whose figures precipitated the original scandal, classified it ninth in the country within the year, using broadly similar indicators.

Still, the point here is that we’re again talking about information openness with patient considerations at the centre. For our purposes, all we need to take out of the Mid-Staffs experience is the lesson that getting information right is at least as important as making it accessible.

We also read that ‘the NHS will be held to account against clinically credible and evidence-based outcome measures, not process targets.’ The focus on outcomes will be a major theme for anyone involved in healthcare information in the coming years.

All this needs to be set against the background of the increasing shift towards GP-led commissioning and the unravelling of the National Programme for IT.

It may be a little premature to assume that the Commissioning Consortia will get off the ground any time soon. It feels to me as though a lot more money will have to be found to cover management costs. The Tory Andrew Lansley is unlikely to like the idea that he’s following in the footsteps of Nye Bevan, Socialist founder of the NHS, but he may find himself having to deal with doctors as Bevan did, by ‘stuffing their mouths with gold.’

Two aspects are going to dominate a reformed commissioning process. The first is that GPs are going to be interested in buying packages of care – treat this diabetic, remove that cataract, manage this depression – rather than just elements of a package – carry out this test, administer that medication, provide this therapy . So it’s no good saying ‘we provided another outpatient attendance’ if the protocol for the condition doesn’t allow for another attendance: the consortium will challenge the need to pay for the additional care. An approach based on care packages means analysis of pathways, not events.

The second is that outcomes are going to be crucial. So pathways have to be taken to their conclusion, which means they can’t be limited to what happened before discharge from hospital.

It seems to me that this is going to mean moving beyond current measures – readmissions or in-hospital mortality – to look at outcome indicators that tell us far more: patient reported outcome measures, through questionnaires about health status after treatment, and mortality within beyond discharge, through linking patient records with Office of National Statistics data.

Only with these measures will it be possible to see if care is delivering real benefit and, therefore, real value for money.

What about the demise of the National Programme? It always struck me as odd that a drive for efficiency and cost control should have set out to create local monopolies for the supply of software. How could that maintain the kind of choice that we wanted to offer patients, and therefore exercise the downward pressure on price and upward pressure on quality that competition is supposed to generate?

There also seemed to be a fundamental misconception in the idea that it was crucial to get all your software from a single source. One aim, of course, was to ensure that all systems were fully integrated. But if we’re building pathways, we do it with data from different sources linked in some intelligent way. That can be done by imposing on a range of suppliers the obligation to produce the necessary data in the appropriate form. That doesn’t require monopoly but accreditation.

The end of the National Programme, at least as far as local software supply is concerned, has to be welcomed. But, taken with the new pressures for different kinds of data, it will lead to significant pressure on healthcare information professionals, above all to learn to link data across sources and even beyond the limits of a hospital.

A challenge. But, I would say, an exciting one.

Thursday, 23 September 2010

Showing the pathway forward

When it comes to building pathways out of healthcare event data, it’s crucial not to be put off by the apparent scale of the task. In fact, it's important to realise that a great deal can be done even with relatively limited data. Equally, we have to bear in mind that a key to achieving success is making sure that the results are well presented, so that users can understand them and get real benefit from them. 

Since that means good reporting, and therefore a breach with the practice I described in my last piece, this post is going to be rich in illustrations. They were most kindly supplied by Ardentia Ltd (and in the interests of transparency, let me say that I worked at the company myself for four years). The examples I've included are details of screenshots from Ardentia's Pathway Analytics application, based on sample data from a real hospital. At the time, the hospital wasn't yet in a position to link in departmental data, for areas such as laboratory, radiology and pharmacy, so the examples are based on Patient Administration System (PAS) data only. My point is that even working with so apparently little can provide some strikingly useful results.  

The screenshots are concerned with Caesarean sections for women aged 19 or over. The hospital has defined a protocol specifying that cases should be managed through an ante-partum examination during an outpatient visit, followed by a single inpatient stay. Drawing on Map of Medicine guidelines, it suggests that a Caesarean should only be carried out for patients who have one of the following conditions: 
  • Gestational diabetes
  • Complications from high blood pressure
  • An exceptionally large baby
  • Baby in breech presentation
  • Placenta praevia
The protocol can be shown diagrammatically as two linked boxes with details of the associated conditions or procedures. For example, the second box in the diagram shows the single live birth associated with the section, and then five conditions one of which should be present to justify the procedure. 
Detail of an Ardentia Pathway Analytics screen with a protocol for Caesarean Sections
Next we compare real pathways to the protocol. At top level, we look only at the PAS events (OPA is an outpatient attendance and APC is an inpatient stay):
Part of the screen comparing actual pathways to the protocol (the full screen contains several more lines).
Note the low-lighted line, second from the top, that corresponds to the protocol shape.
The first striking feature of the comparison is that only a minority (14%) of the cases corresponds to the protocol at all. 65% of the cases have a single admitted patient care event without an outpatient attendance. This should lead to a discussion of whether the protocol is appropriate and whether this kind of case could be legitimately handled with a single inpatient stay and no prior outpatient attendance (perhaps as a an alternative protocol structure).
Another feature is the number of cases involving a second or subsequent inpatient stay. Now there’s a health warning to be issued here: these screens are from a prototype product and the analysis is based on episodes, not spells, so we can’t be certain the second admitted patient care event is an actual second stay – it might be a second episode in the same stay. If, however, an enhanced version of the product showed there really were subsequent stays, we’d have to ask whether what we are seeing here are readmissions. In which case, is something failing during the first stay?
We can drill further into the information behind these first views. For instance, we could look more closely at the eight cases which apparently involved an outpatient attendance followed by two inpatient stays:
Three pathway shapes or types followed by cases that apparently
involved an additional inpatient stay
 The first two lines show instances where the delivery took place in the first inpatient stay (the box for the first stay is associated with a circile containing the value '1', corresponding to the entry in the protocol for a single live birth). In seven of these cases, the patient needed further inpatient treatment after the Caesarean. The last line shows something rather different: the patient was admitted but not delivered and then apparently had to be brought back in for the delivery.
Note that the middle line shows that just two cases out of the total of eight are associated with a diagnosis specified by the protocol as a justification for a Caesarean: they are linked with condition 5, breech presentation. The fact that no such information is recorded for the other six suggests either that Caesarean sections have been carried out for cases not justified by the protocol, or that key data is not being recorded. Either way, further investigation seems necessary.
We can also look in more detail still at individual cases.

Clinical details for a specific event
The example shows a case that has followed the protocol: an ante-partum examination was carried out on 5 May and the patient was admitted on the same day, with the Caesarean section taking place on 8 May. The ticked box in the greyed-out diagram shows that a condition justifying the caesarean has been recorded (placenta praevia). This is confirmed by the highlighted box of detailed information (note that the consultant's code has been removed for confidentiality reasons).

The simple examples here show that pathway analysis provides a real narrative of what happens during the delivery of healthcare to a patient. On the one hand, it can answer certain questions, such as why a Caesarean was carried out at all, and on the other it can suggest further questions that need investigation: what went wrong with this case? why was the procedure carried out in the first place? was there a significant deviation from the protocol?

If we can do that much with nothing more than simple PAS data, imagine how powerful we could make this kind of analysis if we included information from other sources too...

Monday, 20 September 2010

Caution: software development under way

Software development work has admirably high professional standards. Unfortunately, developers find it a lot easier to state them than to stick to them.

If your development team is one of those that lives up to the most exacting standards, this blog post isn’t for you. If, on the other hand, an IT department or software supplier near you is falling short of the levels of professionalism you expect, I hope his overview may give you some pointers as to why.

Estimates, guesstimates

One of the extraordinary characteristics of developers is their ability to estimate the likely duration of a job. It’s astonishing how they can listen for twenty minutes to your description of what you want a piece of software to do, and then tell you exactly how long it’ll take to develop.

Afterwards you may want to get an independent and possibly more reliable estimate, say by slaughtering a chicken and consulting its entrails.

At any rate, multiply the estimate by at least three. This is because the developer will have left a number of factors out of account.
  • He – and it usually is a ‘he’ – already has three projects on the go. He’s told you he’s fiendishly busy, but that won’t stop him estimating for the new job as though he had nothing else on. Why? Because a new project is always more interesting than one that’s already under way.
  • He’ll make no allowance for interruptions, though he knows that his last three releases were so bug-ridden that he’s spending half of every day dealing with support calls.
  • He’ll make no allowance for anything going wrong. I suffered from this problem in spades. I remember very clearly the one project I worked on which came in less than 10% over schedule. It’s the only one I remember when I’m estimating. All the others, which came in horrendous overruns, are expunged from my mind.
  • He only thinks of his own time. For instance, he hasn’t allowed for documentation. Developers are part of a superior breed that lives by mystical communication with each other. Writing things down is like preparing a pre-nuptial agreement: it destroys all the romance. As for QA, well, yes, of course there should be some, but only to confirm that the software is bug-free. A few days at the end of the project. You object that there may be some feedback, as QA finds errors that need to be fixed. Well, yes, add a few days for that too, but believe me, it really isn’t going to hold up the project.. The Red Queen in Lewis Carroll’s Through the Looking Glass claimed ‘sometimes I've believed as many as six impossible things before breakfast.’ If you want to emulate her, start with ‘you can get good software without extensive QA.’ 
  • He hasn’t actually seen a specification yet. That one deserves a section to itself.
Specifications – who needs one?

Once you’ve told the developer what you need from the new system, he just wants to get on with it. He doesn’t want to waste time writing requirements down. He wants to get on with cutting code.

Perhaps I should have written ‘Code’, with a capital ‘C’, since it has the status of near-sacred text. For those who don’t know it, it’s made up of large blocks of completely opaque programming language. Some unorthodox developers believe in including the occasional line of natural English, so-called comment lines, with the aim of explaining to someone who might come along later just what the code was intended to do. To purists, these lines just interrupt the natural flow of the Code. The next guy will be another member of the sacred band and will work out what the Code was intended to do, just by reading it and applying his mystic intuition. Comment lines are just boring, like specifications.

It’s true that specifications can be deadly. I recently saw a 35-page text covering work that we actually carried out in less than five days. The spec contained at least one page marked ‘This page intentionally left blank.’ Whenever I see one of those I want to scribble across it ‘why wasn’t this blank page intentionally left out?’

That kind of thing gives specifications a bad name, but something tighter and more to the point can be really useful. It can at least ensure that we understand the same thing by the words we use.

Once I came across a system which assumed that ‘Non-Elective’ meant the same as ‘Emergency’. Terribly embarrassing when you have to explain to a Trust why its emergency work has shot up while its maternity work has fallen to zero along with the tertiary referrals it used to receive.

Of course, if you’re working with people who just never need anything like that made clear to them, you may well be able to get away without a proper spec. One word of warning though: it’s really difficult to see how you can test software to see if it’s behaving properly, if you haven’t previously defined what it should be doing in the first place.

It’s about the reporting, dummy.

Ever since Neanderthal times man has been expressing himself by means of graphics. So why in the twenty-first century are IT professionals finding it so difficult to understand the need to do the same?

Most users of healthcare information think its aim should be to help take better decisions about care delivery. So they might want to see a range of indicators all included in a single dashboard-type report. They may want to be able to drill up and down, say from a whole functional area within a hospital down to individual clinical teams to groups of patients with similar diagnoses. They may want to see values for the whole year or for a single months or, indeed, for trends across several months. They may ultimately want to get down to the level of the individual patient records behind the general indicator values.

Now many IT people will simply yawn at all this. Have you ever come across the term ‘ETL’? It means extract, transfer and load. The most exciting for an IT person is ‘Extract’. This means he’s looking at someone else’s system. This is a challenge, because the probability is that the teams who built that system didn’t bother with any comment lines or documentation – they’re kindred spirits, in fact. So it’s a battle of wits. Our man is hunting among tables with names like ‘37A’ or ‘PAT4201’, trying to identify the different bits of information to build up the records he’s been asked to load. And it’s a long-term source of innocent fun: system suppliers are quite likely to change the structure of their databases without warning, so that our developer can go through the whole process again every few months.

Next comes Transfer. Well, that’s a bit less absorbing though it can still be amusing. Your tables, for instance, might hold dates of birth in the form ‘19630622’ for 22 June 1963. The system you’re reading from might hold them in the form ‘22061963’. You can fill some idle hours quite productively writing the transfer routines mapping one format to the other.

Finally, there’s Load. Well, OK. Yes, it has to be done, but it’s not half as exciting. Get the data in, make sure that it’s more or less error-free. A bit fiddly, but there you go. Once it’s finished, your work is done.

Have you noticed the omission? We’ve done E, T and L. There’s been no mention of ‘R’ – Retrieval. What matters for IT is getting the data in and storing it securely. Making it available for someone else to use? Come on, that’s child’s play once the data’s been loaded into a database. It’s someone else’s department altogether.

Sadly, that’s not a department that is always as well staffed as it might be. That’s why hospitals are awash with data but short on information. That’s why we’ve spent billions on information systems with so little to show for it. That’s why clinical departments that want to assess their work build their own separate systems, creating new silos of data.

Unfortunately, investment isn’t as easy any more, and we certainly can’t keep making it without the real promise of a return. It’s great to see developers having fun, of course, but wouldn’t be even more fun to deliver systems that really worked and that healthcare managers really wanted to use? Systems that genuinely delivered information for management?

Sound utopian? Maybe it is.

But since it’s pretty much the minimal demand any user should be making of an information system worthy of the name, maybe it’s time we started insisting on it a bit more forcefully.

Wednesday, 25 August 2010

Semmelweis: mortality and benchmarking

Semmelweis in 1860
It concerns me that in my previous post I may have given the impression that I thought that mortality could never be a good indicator of care quality (or, strictly, poor care quality). This is by no means the case: what I’m saying is that mortality figures have to be handled with prudence and there are many areas of care where they are not helpful, if only because mortality is so low.

One of those areas, in the developed world at least, is maternity services. I say in the developed world because in 2008, the maternal mortality rate in the UK was 8.2 per 100,000; in Ghana it was 409 and in Afghanistan it was 1575, so in the latter two countries it is certainly a useful indicator, indeed an indictment of how little we have achieved in improving healthcare across the world.

It used to be a significant indicator in Europe too. In 1846, for example, Professor Ignaz Semmelweis was working in a Viennese hospital in which two clinics provided free maternity services in return for the patient accepting that they would be used for training doctors and midwives. Semmelweis was appalled to discover that there were massively different rates of death from puerperal fever, or childbed fever as it was called, in the two clinics. As the table below shows, the figures over six years showed mortality of just under 10% in the first clinic and just under 4% in the second.

Semmelweis's findings for the two Clinics. Source: Wikipedia


In a fascinating early example of benchmarking, Semmelweis carried out a detailed study of both clinics gradually eliminating any factor that could explain the difference. One possible cause he was able to exclude early on was overcrowding: women were clamouring to get into the second clinic rather than the first, for obvious reasons, so it had a great many more patients.

Eventually, the only difference he could identify was that the first clinic was used for the training of doctors and the second for the training of midwives. And what was the difference? The medical students also took part in dissection classes, working on putrefying dead bodies, and then attended the women in labour without washing their hands. Semmelweis was able to show that with thorough handwashing using a sterilising solution it was possible to get childbed fever deaths down to under 1%.

Unfortunately, his findings weren’t received with cries of joy. On the contrary, since he seemed to be suggesting that the doctors were causing the deaths, he met considerable resistance. Semmelweis died at the age of 47 in a lunatic asylum (though this may not have been related to the reception of his work). It took Louis Pasteur's research and the adoption of the theory of disease transmission by germs for Semmelweis’s recommendations to win widespread acceptance.

This is a striking illustration of the principle that it isn’t enough to demonstrate the existence of a phenomenon and that you have to have a plausible mechanism to propose for it too. Semmelweis had shown the germ-borne spread of disease, but he hadn’t proposed the germ mechanism to explain how it happened.

Still, Semmelweis’s works remains a brilliant use of mortality as an indicator and the use of benchmarking to achieve a breakthrough in the improvement of healthcare. An excellent example of the brilliant use of healthcare information.

Thursday, 19 August 2010

Indicators are only useful if they’re useful indicators

We’ve seen that pulling healthcare data from disparate sources, linking it via the patient and building it into pathways of care are the essential first steps in providing useful information for healthcare management. They allow us to analyse what was done to treat a patient, how it was done and when it was done. Paradoxically, however, we have ignored the most fundamental question of all: why did we do it in the first place?

The goal of healthcare is to leave a patient in better health at the end than at the start of the process. What we really need is an idea of what the outcome of care has been.

The reason why we tend to sidestep this issue is that we have so few good indicators of outcome.

In this post we’re going to look at the difficulties of measuring outcome. In another we'll review the intelligent use that is being made of existing outcome measures, despite those difficulties, and at initiatives to collect new indicators.

The first thing to say about most existing indicators is that they are at best proxies for outcomes rather than direct measures of health gain. They're also usually negative, in that they represent things that one would want to avoid, such as mortality or readmissions.

Calculating them is also fraught with problems. Readmissions, for example, tend to be defined as an emergency admission within a certain time after a discharge from a previous stay. The obvious problem is that a patient who had a perfectly successful hernia repair, say, and then is admitted following a road traffic accident a week later will be counted as a readmission unless someone specifically excludes the case from the count.

At first sight, it might seem that we should be able to guard against counting this kind of false positive by insisting that the readmission should be to the same speciality as the original stay, or that it should have the same primary diagnosis. But if the second admission had been as a result of a wound infection, the specialty probably wouldn’t have been the same (it might have been General Surgery for the hernia repair and General Medicine for the treatment of the infection). The diagnoses would certainly have been different. However, this would certainly have been a genuine readmission, and excluding this kind of case would massively understate the total.

It’s hard to think of any satisfactory way of excluding false positives by some kind of automatic filter which wouldn’t exclude real readmissions.

Another serious objection to the use of readmission as an indicator is that in general hospitals don’t know about readmissions to another hospital. This will depress the readmission count, possibly by quite a substantial number.

Things are just as bad when it comes to mortality. Raw figures can be deeply misleading. The most obvious reason is that clinicians who handle the most difficult cases, precisely because of the quality of their work, may well have a higher mortality rate than others. Some years ago, I worked with a group of clinicians who had an apparently high death rate for balloon angioplasty. As soon as we adjusted for risk of chronic renal failure (by taking haematocrite values into account), it was clear they were performing well. It was because they were taking a high proportion of patients at serious risk of renal failure that the raw mortality figures were high.

This highlights a point about risk adjustment. Most comparative studies of mortality do adjust for risk, but usually based on age, sex and deprivation. This assumes that mortality is affected by those three factors in the same way everywhere, and there's no really good evidence that they really do. More important still, as the balloon angioplasty case shows, we really need to adjust for risk differently depending on the area of healthcare we’re analysing.

This is clear in Obstetrics, for instance. Thankfully, in the developed world at least, death in maternity services is rare these days, so mortality is no longer a useful indicator. On the other hand, the rate of episiotomies, caesarean or perineal tears are all relevant indicators. They need to be adjusted for the specific risk factors that are known to matter in Obstetrics, such as the height and weight of the mother, whether or not she smokes, and so on.

Mental Health is another area where mortality is not a helpful indicator. Equally, readmission has to be handled in a different way, since the concept of an emergency admission doesn't apply to Mental Health, and generally we would be interested in a longer gap between discharge and readmission than in Acute care.

Readmission rates and mortality are indicators that can highlight an underlying problem that deserves investigation. They have, however, to be handled with care and they are only really useful in a limited number of areas. If we want a more comprehensive view of outcome quality, we are going to have to come up with new measures, which is what we’ll consider when we look at this subject next.

Wednesday, 11 August 2010

It’s the patient level that counts

What happens in healthcare happens to patients. Not to wards or theatre or specialties, far less HRGs, DRGs or Clusters. Ultimately, the only way to understand healthcare is by analysing it at the level of the individual patient.

Much of the information we work with is already at that level or even below. An inpatient stay or an outpatient attendance is specific to a particular event for an individual patient. We need to be able to move up a level and link such event records into care pathways.

Much information, on the other hand, is held at a level far above that of the patient. Financial information from a ledger, for example, tells us how much we spent on medical staff generally but not on a specific patient. Most pharmacy systems can tell us what drugs were used and how much they cost but usually can’t tell us is which medications were dispensed for which patients.

On the cost side, one answer to this kind of problem is to build relatively sophisticated systems to apportion values – i.e. to share them out across patient records in as smart a way as possible. For example, an effective Patient Level Costing system uses weights reflecting likely resource usage to assign a higher share of certain costs to some patients than to others. The effect is to take high-level information down to patient level.

In some areas, that's the only approach that will ever work. For nursing costs, one can imagine a situation where patients have bar-coded wrist bands that nurses read with wands, giving an an accurate view of the time taken over each patient. But the approach would be fraught with problems:

  • it would be expensive and impose a new task, designed only to collect information without contributing to patient care, on nurses who already have more than enough to do
  • it would be subject to terrible data quality problems. Just think of the picture we’d get if a nurse wanded himself in to a bedside, and then forgot to wand out, which it wouldn't surprise me to see happen with monotonous frequency
  • even if all nurses could be persuaded to use the wands and did so accurately and reliably, it’s not clear that we would get a useful view of nurse time use: after all, when staff are under less pressure, a nurse might take longer over a routine task such as administering drugs, but it would be nonsense to assign the patient a higher cost as a result
For resources like nursing, it seems sensible to share the total figure across all the patients, in proportion to the time they spent on a ward, as though they were incurring a flat fee for nursing care irrespective of how much they actually used. This suggests that apportionment actually gives the most appropriate picture.

But with other kinds of cost, we really ought to be getting the information at patient level directly. We ought to know exactly which prosthesis was used by a patient, how much physiotherapy was delivered, precisely which drugs were administered. If we don’t, then that’s because the systems we’re using aren’t clever enough to provide the information. In that case we need cleverer systems.

For example, pathology systems tend to have excellent, patient-level information already. We just need to link the tests to the appropriate activity records, making intelligent use of information such as the identity of the patient and the recorded dates. This has to be done in a flexible way, of course, to allow for such occurrences as a pathology test carried out some time after the clinic attendance at which it was requested.

Linking in pathology information would immediately make pathway analysis richer. When it comes to costing, we still need an apportionment step, to calculate individual test costs from overall lab figures, but then the calculated value can be directly assigned to the patient record.

The same kind of approach can be applied to diagnostic imaging, the therapies and many other areas. For example, we can calculate a cost for a multi-disciplinary team meeting and then assign that cost to the patient record, as long as the information about the meeting is available in a usable form.

Then, however, there are other areas of work where we should be able to operate this way but generally can’t. Few British hospitals have pharmacy systems that assign medications to individual patients. If they did, and given that the pharmacy knows the price it is being charged for each dose, we could link the prescription to the patient record and assign its actual cost to it. Given that pharmacy is the second biggest area of non-pay cost in most acute hospitals, after theatres, this would be a significant step forward.

The same is true of similar services in other departments, such as blood products.

Getting this kind of information right would greatly enhance our understanding both of care pathways and of patient costs. As I’ve already pointed out, that would be a huge improvement in the capacity of hospitals to meet the challenges ahead.

Saturday, 7 August 2010

Navigating the Pathways and Protocols of Care


A major advantage of the pathway view of healthcare is that it allows us to compare the actual of process of treatment with agreed protocols. A protocol represents a consensus view among experts on the most appropriate way of treating a particular condition.

Although such consensus often exists, it’s striking how frequently what actually happens differs substantially from accepted best practice. Sometimes it’s for good reasons associated with the particular case, but often it’s simply a failure to stick to guidelines with the result that care falls short of the highest standards. Oddly, poor care may often be more expensive too, since additional work is needed to correct what could have been done right in the first place. So there’s a double reason for trying to eliminate this kind of variation.

Unfortunately, today’s hospital information systems generally find it difficult to support pathway analysis and comparisons with protocols. This is partly because the information needs to be brought in from multiple sources and then integrated, which may seem dauntingly difficult. However, there is actually a great deal that can be done with relatively simply data. There’s a lot to be said for not being put off by the difficulty of doing a fully comprehensive job, when one can start with something more limited now and add to it later.

Take the example of cataract treatment in a hospital that has decided to follow the guidelines of the NHS version of the Map of Medicine. The Map suggests the preferred procedure is phacemulsification. Routine cases have day surgery with a follow-up phone call within 24 hours and possibly an outpatient review after a week. This allows us to build a pathway for routine cases entirely from PAS data or at worst PAS and other Contacts data.


Map of medicine suggests non-routine cases occur where there is a particular risk of complications, the patient only has one eye or the patient is suffering from dementia or learning difficulties. In these instances, we would expect daily home visits in the first week and certainly an outpatient attendance for review within one to four weeks of discharge.

So here’s a second pathway structure:


Again, information about home visits might be in the PAS or might have to be added. We also need to check on diagnosis information from the PAS for dementia or learning difficults.

The two pathway structures shown above correspond to the two protocols. So now we can compare them with similar pathways built for real patients in the hospital. The aim is to limit the number of cases that we investigate further to only those that differ significantly from the guidelines.

So any cases where the pathway is the same as for routine cases can be ignored.

Any cases where the pathway is the same as for non-routine cases can be ignored as long as there is evidence of dementia or of learning difficulties, or the patient had a single eye or there was a serious risk of complications. It's possible that the last two pieces of information aren't routinely collected, in which case we shall find ourselves investigating some cases that didn't need it until we can start to collect them.

Overall what this approach means is that we can eliminate a lot of cases from examination and concentrate management attention on only those where there may be a real anomaly, and action could lead to an improvement in the future. That has to be a huge step forward over what most hospitals can do today. Yet it involves relatively straightforward work on information systems.

Adding other data could improve the analysis. Information from a theatre system would tell us about, say, how long the operation takes. If patient-level information about medication is available, it can be linked in to check that appropriate drugs are being administered at the right times.

In the meantime though, we would be working with a system that should be relatively easy to implement and can help us make sure patients are being treated both effectively and cost-effectively.

That sounds like a something it would be good to do, given today's pressure to deliver more while costing less.

Most of the information to check on compliance will be in hospital Patient Administration Systems (PAS).

The PAS records procedures so we can check whether phacoemulsification was used or not. In some acute hospitals, the PAS may not record non face-to-face contacts, which would cover the telephone follow-up, but the information is certainly held somewhere and it should not be insuperably difficult to link it with PAS data. All these data items have dates associated with them, so we can apply rules to check that the right actions were taken at the appropriate time.